Well, it has been six months since we were with Dr. Winer and the staff at NIH. Tomorrow Zach and I are going back for routine tests and checkups. Zach is doing remarkably well on the PTH 1-34 injections. The most obvious improvement is how Stable his calcium levels have maintained. We are so thankful for this. Here are some pic's to help you visulize where we r going!
The National Institutes of Child Health and Human Development
Bethesda, Maryland.
This is the Front Door Canopy at NIH. This is where we go after our security check
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From this picture you can see the window to the room we stayed in last time. The first right wing on the Hospital in the Ped's ward. Zach's room is the last window of the 5 on the right. You can see the tiny circle green area on the right. Thats a play ground where we spent lots of time with other kids, He can't wait to go see who he can play with! lol!
However, this trip we will be staying across from NIH at the Children's Inn
This is a very special place. I will attach a link to this so you can hear more about it. Zach is Super Pumped and we've been having a good laugh about it. He tells everyone he is going on a "holiday" LOL! Well if collecting urine for 48 hours straight, Blood tests 3x per day, Kidney function tests, Dexa scans and CT scans sound like a "holiday" to him......see ... its funny.
Well, I need to go finish packing. We will keep you posted!
Thankyou for all your love and prayers.
God Bless You!
XOXOXOXOOXOXOXO
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